Background and overview

I learnt more about the health system from being an inpatient than I had in 20 years of working as a neuropsychologist. I was unexpectedly diagnosed with two brain tumours on 4/9/13. They turned out to be grade IV Gliomas (glioblastoma multiforme (GBM)). After removal of the right parietal and left occipital tumours, I received the standard treatment under the Stupp protocol (combined Temozolamide (TMZ) and conformal radiotherapy 5 days/week for 6 weeks), but the TMZ had to be ceased after 5 weeks because I had started to develop pancytopenia, where more than one of my blood counts had begun to drop. By Christmas 2013, I had become anaemic and needed a couple of blood transfusions. I ended up in hospital for 3 weeks of the 2014 new year after experiencing my first seizure (suggestive of a right temporal lobe focus) on 31/12/13). They were so worried about my bone marrow, they did a biopsy. Luckily, it was all clear of any nasty disorders. It had just been suppressed by the TMZ My blood counts slowly returned to normal with daily injections of GCSF, which stimulate bone marrow function, for several months. For 17 months I was doing better each day, without any physical impairments or major cognitive problems A third brain tumour was found in the right temporal lobe on 2/1/15, and removed 6/1/15, only to reappear on 17/2/15 after I started to feel vague symptoms at the end of 2014. I had my 4th round of brain surgery on 1/3/15, followed by stereotaxic radio surgery of a residual, inoperable, tumour, on 17/4/15. I've been feeling like my old self again since that highly precise form of radiotherapy, and it feels fabulous.

My way of coping.
I choose to live in hope that everything will work out for the best. I've learnt that even though things are sometimes unpleasant, life and love go on forever. I put my faith in the life force that created and unites us all in love, across all time, space, and dimensions. I refuse to succumb to fear, which is an invention of our imaginations. There are an infinite number of things to fear, both in this world an in our imaginations, and most of them never eventuate. I choose not to dwell on them, and to focus instead on counting my many blessings, current and past, and to have faith and hope that if I look after the present moment, the future will look after itself.

If you're reading, and haven't been in touch, please don't be shy, send me a brief private message using the contact form on the right. It's nice to know who's out there. Blogging can leave me feeling a little isolated at times (I used to have recurrent dreams of being out on a limb over a canyon, or of starting to strip off in a crowded waiting room). Your emails are appreciated, although I can't necessarily answer all of them.


Sunday, 7 December 2014

Pins and needles

I've been getting pins and needles in the little finger and ring finger of my right hand since yesterday. There seemed to be similar sensations in my right foot and jaw/lower face. I've emailed my oncologist to seek his advice.
It's hard not to be a little paranoid about it, but better to be alert than to leave things unchecked. 
I hope I've just pinched a nerve through sleeping awkwardly, but I'm not in any pain. I'm due for another MRI in January, I'm hoping it will continue to show improvements.
This is all very ironic because I read a bedtime story to the boys last night about some sailors who were shipwrecked on an island inhabited by beautiful women who fed them wonderful food. When they asked the women why there were no men on the island. The women said they'd all gone away. The sailors never wanted to leave,until one night,a sailor heard someone talking outside his room, and he looked outside to see some goblins, who were saying they needed to feed the sailors until they were nice and fat, and then they'd feed on them. 
The sailor told his shipmates, and they all prayed for help from the gods, which came in the form of a winged horse, who was to carry them all away. One sailor didn't believe that the beautiful women were really goblinsin disguise, so he refused to leave, no matter how much his friends pleaded with him. As the giant horse was flying them away from the island, the sailors heard their friend calling to them. He had seen the goblins preparing a big pot for their feast. He wanted to be rescued. 
The moral of the story, conveniently included in the book, was that it's sometimes hard to see that you're in a difficult situation, but that you can't fix it if you don't acknowledge the reality.

It would be nice if a winged horse would come and take all my problems away, but all I can do is keep meditating, staying grounded in the present, and hoping for good health and happiness for every sentient being. As well as eating healthily, exercising, maintaining contact with friends and family, and taking my medications on time.

I'm hoping this tingling is just transitory, will see if I can fix it with a massage.
Take care, and thanks for reading.